Knowledge Translation

Transforming scientific discovery into meaningful outcomes for patients and families is central to MAC’s mission. By prioritizing knowledge translation, MAC ensures its research reaches beyond academic journals to the clinicians, researchers, guideline committees, and families who need it most. 

Through open communication, shared scientific leadership, and strong partnerships, MAC continues to advance care and understanding for individuals affected by Hereditary Thoracic Aortic Disease (HTAD) worldwide.

The application of genetic testing and precision medicine impacts patient care through:

  • Earlier detection
  • More precise monitoring
  • Better-timed surgical interventions
  • Reduced risk of aortic dissection
  • Improved long-term survival
  • Decreased morbidity, better quality of life

The Consortium shares its findings through:
Scientific Publications and Guidelines: MAC disseminates data through peer-reviewed publications and contributes to international guidelines that establish standards for the diagnosis and management of HTAD.

International Meetings and Summits:
MAC’s scientific summits and working groups provide forums for sharing emerging results, refining research priorities, and accelerating innovation.

Collaboration with Patient Organizations:
MAC works closely with patient organizations by sharing information, offering educational webinars, and serving as a trusted resource for patients and families.

Education and Capacity Building:
By sharing data and best practices across institutions, MAC strengthens the ability of clinical teams worldwide to effectively diagnose and treat genetic aortic disorders.