Criteria for Membership
- Members
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- Criteria for Membership
Researchers or clinicians will be eligible for enrollment if they fulfill the following criteria.
Inclusion Criteria for Enrollment
Inclusion criteria for entry into the MAC are:
- The individual is associated with a recognized educational institution or hospital
- Shown exemplary contributions to the field of aortic disorders through clinical practice, research, and/or publications.
- Support the Consortium’s mission and activities
- Suggest potential sources of funding and work to generate funding.
New Member Appointments
New Consortium members can be nominated by any member of the Executive Committee and approved by majority vote. Or apply for membership LINK applications will be reviewed quarterly. New members will receive a welcome package from GADA Canada.
New Member Applications will be reviewed on a quarterly basis as one of the following eligible criteria as below:
- Full membership – MAC members: The individual should be competent to recruit patients, contribute high quality data to MAC and lead research studies using the data in MAC.
- Associate membership: Genetic counsellors and other professionals who work with a good aortopathy program, involved in clinical appraisal and patient follow up and liaison with clinicians looking after the patients. Associate members can move into full membership if they input high quality data and take the leadership in doing so. A letter in support of full membership will be required for the committee’s approval.
Criteria for Study Enrollment
Principal Investigators will be eligible for enrollment if they fulfill the following criteria.
Inclusion Criteria for Enrollment
Inclusion criteria for entry into the Registry are:
- Agreement to contribute subjects to a given study
- Completion of local institutional review board approval
- Agreement to the publication policy of the Consortium
Methods of Enrollment
Information about Consortium projects will be disseminated to potential study subjects using a number of sources. The principal means of enrollment will be Consortium members.
Enrollment Procedures
Eligible patients will be solicited during clinic visits or through retrospective review of medical records followed by direct contact according to protocols approved by the local Institutional Review Board.
Signed informed consent will be obtained prior to any data or sample collection. Patients will receive a hard copy of the consent form to keep.